Monday, December 7, 2009

Bailey Baio Angel: December 2009

Meet the December 2009 BBAF Angel, Ben
Thanks to the newborn screening, Ben's family received early notification that he had a disorder called 3-methylcrotonyl-coenzyme A carboxylase deficiency (3MCC).

Rosemary, Ben's mother, credits the information and contacts that she received from the BBAF as being instrumental to her understanding of the disorder. "She is grateful for Ben's newborn screening which led to his diagnosis and the opportunity to prevent complications from his disorder."

Right now Ben "is a beautiful, round (weighing almost 20 pounds) baby boy! Always a smile on his face, he adores his big brothers and loves to be cuddled."

Please take a moment to read Ben's full story

Want to Help?
Please join us in supporting the Bailey Baio Angel Foundation®. By purchasing a Bailey Hat or Bailey Headband, a portion of the proceeds will go to the Bailey Baio Angel Foundation®, started by Scott & Renee Baio.

Angel Discount
Starting this month our blog readers will receive an Angel Savings Coupon Code to Save 20% all month when they shop on-line.

Enter Coupon Code: AngelBen1209 at checkout.

The Mission
Simply faBOWlous® is proud to be an Angel Sponsor of the Bailey Baio Angel Foundation® (BBAF), started by Scott & Renee Baio. Each month a special child with a metabolic disorder is chosen to be the foundation's Angel.
The foundation's goal is to gain awareness and help raise funds for expanded newborn screening, while also providing support to children & families that are coping with metabolic disorders...learn more about the BBAF!

This month Scott and Renee Baio took their mission to national television with a visit to The Doctors. Simply faBOWlous® is proud to be a sponsor to this great organization.

1 comment:

  1. Here is a link to more information about the genetics of3 Methylcrotonyl Coenzyme A Carboxylase Deficiency that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: I hope it helps.  AccessDNA


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